RYLAN GELB MEMORIAL SCHOLARSHIP
GAMA, the regional arm of the Galactosemia foundation, was founded by an amazing group of people with children who have Galactosemia. Rylan's story touched these families and they set up a scholarship in his name. This scholarship helps families with children who have Galactosemia attend the annual conference. These conferences educate families and encourage life long connections so that nobody has to feel alone when dealing with the challenges that come with raising a child with Galactosemia. The second goal of this memorial scholarship is to finically assist families to be evaluated by a medical professional specializing in galactosemia. There are a few in the country that have experience dealing with this disease and it can be very expensive to travel to these institutions. Having a rare genetic disorder can be very isolating and difficult when looking for answers. These institutions give the families the support they need and allow children to reach their potential. Please consider donating to GAMA or specifically to the Rylan Gelb Memorial Scholarship Fund.
To donate to the scholarship, click on GAMA. A new window will open with the GAMA website. Once you are on the GAMA site, click the donate button at the bottom of the page. Paypal will open and you can write "Rylan Gelb Scholarship" in the comments section. Checks can also be made out to GAMA and mailed to:
GAMA c/o Denise Wilburn
19405 W. Manteno Rd.
Wilmington, IL 60481
On the memo line please write "Rylan Gelb Memorial Scholarship."
GAMA, the regional arm of the Galactosemia foundation, was founded by an amazing group of people with children who have Galactosemia. Rylan's story touched these families and they set up a scholarship in his name. This scholarship helps families with children who have Galactosemia attend the annual conference. These conferences educate families and encourage life long connections so that nobody has to feel alone when dealing with the challenges that come with raising a child with Galactosemia. The second goal of this memorial scholarship is to finically assist families to be evaluated by a medical professional specializing in galactosemia. There are a few in the country that have experience dealing with this disease and it can be very expensive to travel to these institutions. Having a rare genetic disorder can be very isolating and difficult when looking for answers. These institutions give the families the support they need and allow children to reach their potential. Please consider donating to GAMA or specifically to the Rylan Gelb Memorial Scholarship Fund.
To donate to the scholarship, click on GAMA. A new window will open with the GAMA website. Once you are on the GAMA site, click the donate button at the bottom of the page. Paypal will open and you can write "Rylan Gelb Scholarship" in the comments section. Checks can also be made out to GAMA and mailed to:
GAMA c/o Denise Wilburn
19405 W. Manteno Rd.
Wilmington, IL 60481
On the memo line please write "Rylan Gelb Memorial Scholarship."
March of Dimes
The March of Dimes is a special organization that help babies live full and healthy lives. In Rylan's case, it was through the newborn screening, which is researched, funded, and advocated by the March of Dimes, that helped us learn of his extremely rare genetic disorder.
Rylan's team raised over $8000.00 last April to fund this incredible organization.
The March of Dimes is a special organization that help babies live full and healthy lives. In Rylan's case, it was through the newborn screening, which is researched, funded, and advocated by the March of Dimes, that helped us learn of his extremely rare genetic disorder.
Rylan's team raised over $8000.00 last April to fund this incredible organization.
BUDDY BENCH
Rylan was born with a rare genetic condition called Galactosemia that would have caused him to be different. I hope that even with his differences he would have been treated kindly by others, I know he would have been kind to everybody. In his name we have raised money to put a Buddy Bench at an elementary school in Michigan. A buddy bench is a simple idea that helps spread the message of inclusion and kindness by eliminating loneliness and fostering friendship on the playground. Click on the picture to learn more about the Buddy Bench.
Rylan was born with a rare genetic condition called Galactosemia that would have caused him to be different. I hope that even with his differences he would have been treated kindly by others, I know he would have been kind to everybody. In his name we have raised money to put a Buddy Bench at an elementary school in Michigan. A buddy bench is a simple idea that helps spread the message of inclusion and kindness by eliminating loneliness and fostering friendship on the playground. Click on the picture to learn more about the Buddy Bench.
Come back here to see some of Rylan's favorite causes and ways he is continuing to give.